Browsing Clinical Speech & Language Studies (Theses and Dissertations) by Subject "rare disease"
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"I have the child who has something else." Entering the Worlds of How Mothers Make Sense of `Diagnosis' within the context of their Child with a Rare or Undiagnosed Neurodevelopmental Condition in Ireland: An Interpretative Phenomenological Analysis
(Trinity College Dublin. School of Linguistic Speech & Comm Sci. Discipline of Clin Speech & Language Studies, 2024)Information on the experiences of parents whose children have rare or undiagnosed conditions is particularly lacking in Ireland. It can be hypothesised that these parents experience a unique set of challenges, in comparison ...