Exploring the challenges experienced by people with muscular dystrophy living independently (MD INDOLIVING)

Abstract

This study follows up on the national survey undertaken in 2014 by Muscular Dystrophy Ireland (MDI) in which a questionnaire was distributed to all MDI members (n=697). Significantly, 69% of respondents reported that their condition had a big/very big impact on their independence. With this in mind, the aim of this study was to investigate issues that may impede individuals with muscular dystrophy (MD) from independent living. The key objectives of the study were to explore the issues which impede individuals with MD from independent living in terms of:  assistance and support  supporting and managing health  the physical environment  education, employment and further training  financial implications.