Parents of children with autistic spectrum disorders : information, education and family empowerment

Abstract

There is little doubt that the diagnosis of a child with an autistic spectrum disorder (ASD) may have both negative and positive implications for the family’s wellbeing and way of life. Certainly, many families can have positive experiences provided they have access to effective resources that enable them to cope with the ASD. This thesis examines the role of information and parent education in helping parents gain a greater sense of empowerment in all areas of their lives. A primary goal of this thesis is to understand and describe the experiences and consequential information and education needs of parents. These experiences and needs are examined in light of current information and education provision. Insight into both parents’ and professionals’ perspectives is invaluable and significant in light of the increasing prevalence of ASDs and the current lack of effective services for individuals with ASDs and their families in Ireland.